COPD360social welcomes new member Jimmy63 who joins 59,374 current members of our community. Weโ€™re glad you're here!

Blom

Blomcommented onCOPD Foundation Position on Nebulized Hydrogen Peroxide Therapy

This is probably not something you want posted here but I am happy to be a guinea pig by own choice. I have been drinking diluted 3% Food grade hydrogen peroxide for infections back in 2010 until 2017 since I did not do good on antibiotics and was...

3 hours ago

brydy

brydyanswered the question Spiro results

Hi Grandma thxs so much for sharing your good news & update with us! enjoy your new bike!
Grandma05Jonnie Korinko (COPDF Manager of Public and Professional Education)DebbieB.-Connecticut State Captainand 1 other also answered the question Grandma05and 3 others also answered the question

16 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Philips Respironics, Inc. Recalls Trilogy Evo Continuous Ventilators due to a Software-Related Possible Power Malfunction. 


https://www.fda.gov/medical-devices/medical-device-recalls/philips-respironics-inc-recalls-trilogy-evo-continuous-ventilators-due-software-related-possible?utm_medium=email&utm_source=govdelivery

Philips Trilogy Evo Ventilators Software-Related Power Malfunction

Philips Respironics is recalling their Trilogy Evo ventilators due to a software-related possible power malfunction, leading to a sudden loss of ventilation.

16 hours ago

Rayville

Rayville

I hope someone can help me . So about a year ago I started having chest pain when coughing that brought me into the ER That brought me into getting a catscan that showed severed emphysema and hyperinflated lungs . I did a spirometry test that showed Copd and Emphysema.  I was diagnosed wit stage 3 emphysema at age 40 and was told I had 32 & percent lung function.  I dont feel out of breath but this pressure and pain in my pec muscles is there all the time . My doctor thought this could be costochondritis but when i went to physical therapy the doctor said No It wasnt costochondritis but my pecs were tight and to do pec exercises.  I have had my heart checked thats been ruled out . I been living wit this pain for almost a year and no clear answers to why . Its tender to touch above both breast . Ive used heat and cold presses and ibuprofen no help . Im not getting any clear answers or solutions on whats is causing this pain . Any other ideas or test I should be asking  for ? Im so annoyed feeling this pressure pain in my chest everyday.  I been prescribed breztri for inhaler . My chest feels no different . 

17 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question April Showers Bring More Than May Flowers: Self-Care Spring

Excellent advice, Amanda Atkinson, MSN, RN! I, too, will be planting a raised bed. We usually plant on Mother's Day, but with the rain, we have to wait until later in the week. I can't wait to see all of the basil, peppers, and baby carrots pop up throughout the …
DebbieB.-Connecticut State CaptainTonicDk also answered the question DebbieB.-Connecticut State Captainand 1 other also answered the question

18 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Managing anxiety

Hi Anxious Sequoia, I'm sorry that you're struggling right now. Different relaxation techniques work for different people, but here is a list of resources for you: The Coping Guide Learn more --> Coping with COPD Check-In: Finding Time for …
brydyJeanO53DebbieB.-Connecticut State Captain also answered the question brydyand 2 others also answered the question

18 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Anyone else newly diagnosed

Hi Caroline! Welcome to the community. I'm going to echo some of what has been said here so far. I wouldn't stress about the spirometry test just yet... there are factors that can make spirometry unreliable if not performed ideally. If your GP thinks …
Caroline West Virginia State Captain1fatfannydas23and 1 other also answered the question Caroline West Virginia State Captainand 3 others also answered the question

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿ”ท๏ธ๐Ÿ”ท๏ธBLUEBERRY SMOOTHIE๐Ÿ”ท๏ธ๐Ÿ”ท๏ธ Power packed antioxidants!! What a way to start a Monday!!1 1/2 cups almond milk1 medium banana, cut into chunks1 1/2 cups frozen blueberries 3/4 cup vanilla Greek yogurt Place all ingredients in a blender. Blend...

21 hours ago

Grandma05

Grandma05asked the question: Spiro results

seen by the gp this morning and my results are essentially classed as normal at 71. Theyโ€™ve remained the same since 2019 and my other tests have all come back as normal. I keep myself relatively active aim for 6/10 thousand steps a day and have ordered …

21 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYes, today is Monday.
And yes, today is going to be an awesome day!
You are the one who makes today sparkle and shine!
Enjoy every moment of this Monday.
I'll be smiling right alongside you! ๐Ÿ˜€๐ŸŒŸ

23 hours ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question How much excercise/being active do I need

You are doing exactly what my physical therapist told me to do when I got home from the hospital. This does not seem like much, but it will build up your strength and endurance so that you will be able to do Pulmonary Rehab.
Shazam das23Mary K.and 1 other also answered the question Shazam and 3 others also answered the question

1 day ago

RedPower

RedPowerStunning. 

1 day ago

RedPower

RedPower

Autumn here in Australia. Itโ€™s a gorgeous time of year - helps me get out bed to go for my morning walk โ™ฅ God Bless you all. 

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota I went for ride my in red corvette happen to see my great-grandson Westen.  Asked if he wanted to go for for a ride.  usually he really shy of me. Westen just turned 1 May 1st

1 day ago

Karen Deitemeyer - Florida State Captain

Karen Deitemeyer - Florida State CaptainHappy Mother's Day to all my 360Social friends - this card says it all - please click on it:
https://bmacards.com/Q8Co2f

A Friend Is . . . Ecard

A Friend is a hand when you need it, a smile when you're sad, a lift when you're weary, a song when you're glad, a help when you falter, a word when you're blue, a hope for the dreams

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Mothers Day to all the moms here. May this day be special one. "A mother is your first friend, your best friend, your forever friend."  ..."Mother's love is peace.

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain"Happy Mother's Day to all the Moms, Pet Moms, Moms to be, and Moms who are no longer with us." ๐Ÿ’

1 day ago

Jannney

Jannney

I feel so relieved to have joined this group!  Thank you for offering this support x x x

2 days ago

Caroline West Virginia State Captain

Caroline West Virginia State Captainanswered the question Second concentrator

You can put 50 ft of hose on to the 7ft cannula. Research shows that you can use as much as 100 ft of hose without loosing oxygen pressure and saturation.
Bill Clark - Community Manager also answered the question Bill Clark - Community Manager also answered the question

2 days ago

Sunshine52.

Sunshine52.

I have recently been diagnosed with gerd. And I had COPD for about eight years. I have woken up at night not being able to breathe in or out. I have to get up out of bed before Iโ€™m able to breathe. Sometimes I will be making a noise. Itโ€™s only happened when I fell asleep without my cpap machine. I donโ€™t know if itโ€™s my sleep apnea or copd because it seems to take forever to catch my breath. Has anyone else experienced this before?

2 days ago

Sheila B

Sheila B

Does anyone know if support, education, good pulmonologists in the Sarasota, Florida area?

2 days ago

Sheila B

Sheila B

So far I have passed out 3 times in the last 2-3 weeks. I couldn't get to a place to sit in time. When I came to I was gasping for air. I got myself to a sitting position on the floor/ground and talk myself through the steps of diaphragmatic breathing starting with relaxing my shoulders. I am new to COPD diagnosis. I am still being treated by my Primary. She has not referred me to a Pulmonologist. I have been fighting a very resistant UTI and my Primary felt that my sudden, rapid decline may be heart related. Nuclear Stress Test came back abnormal and a Heart Catheterization is scheduled.
Has anyone fainted from Shortness of Breath, especially early on when you did not yet understand your new limitations? Any comments, tips, advise would be extremely appreciated.

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainGood afternoon! This is Esmerelda. She had babies not too long ago. She hasn't brought them out yet. ๐Ÿฆ

2 days ago

shlovestosing

shlovestosing

Thanks for the wonderful welcome. To answer a few of your questionsโ€ฆyes, I do have a pulmonologist but starting Monday I am looking for a new one to get a second opinion. The one I have has only this month put me in physical therapy. Itโ€™s for the whole body because I am weak. He says when I get stronger I will feel better and breathe better. Do yโ€™all agree? Is pulmonary rehab different than physical therapy? If so, he has not put me in that. I am recovering from a week long stay in the hospital with Bacterial Pneumonia, respiratory failure with hypoxia, and sepsis. I survived it. Thankfully! But I breathe much worse now. Iโ€™ve been on oxygen day and night up until this week but now I am to have no oxygen during the day. Only at night. I question the docs decision on this because a simple 10 foot walk to the bathroom makes me feel like Iโ€™m suffocating! Is that normal? Does withholding oxygen make your lungs better? He told me just to sit down and donโ€™t panic, just relax and take slow deep breathes. But if I have to, use the rescue inhaler. See? This is why I want a second opinion. He answers all my questions very vaguely. Almost like I irritate him and thatโ€™s not ok with me. Ya know? I know yโ€™all arenโ€™t doctors but maybe someone has some advice about which direction I should go. I am fixing to read as much info that I can on here. I feel so thankful to have come across yโ€™all. For the information and the insight yโ€™all can give.

2 days ago

LannyV

LannyV

I ran across this site drugs.com and not sure how many know about it, it is worth checking out. Since finding this site I did a search on here and see many use it for a reference on the drugs they are taking for interactions between the drugs.  A good resource to add to your arsenal.

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.